GPs are being offered the opportunity to learn more about rare diseases, through the Rare Disease Awareness Education Support and Training (RArEST) Project.
The project, which is being run by the University of NSW, aims to develop resources, education and training to assist GPs. It includes a focus on mental health, and social and emotional wellbeing.
Project manager Nada Mirkovic said an average full-time GP had 74 active rare disease patients. She said an estimated 2 million Australians live with a rare disease.
‘Despite variation among different rare diseases, people living with a rare disease face common challenges including a lack of awareness and timely and accurate diagnosis,’ Ms Mirkovic said.
‘GPs are the first point of contact in the health system and are best placed to coordinate comprehensive, family-centred care for chronic and complex patients and their families.’
The Rare Disease Awareness Education Support and Training (RArEST) Project aims to develop helpful resources. Let the researchers know how they can help via this short anonymous survey. You can leave your details to learn more, or contact Nada on [email protected].